Today I was pretty grumpy by the time we made it into infusion. I ended up waiting an hour after my appointment time before I got a chair – they were out of chairs and beds, so I had to wait until one cleared. Then when I got one, it was in the corner – it feels like I’m tucked away. The person beside me had the curtain drawn so I felt like I was in a little cave. I was already grumpy, so waiting an extra hour and getting a crappy spot didn’t make me happy.
Then the order in the system was wrong. It showed the amount of steroid I was on for cycles one and two (20mg) instead of the change we made last cycle (8mg). As I write we are still waiting confirmation, but we did manage to get the nurse to let me take 8mg while we wait for the call from my oncologist (the nurse checked with my oncologists nurse practitioner). Because I take the steroid by pill, I need to wait 30 minutes after taking the steroid before chemo – so waiting for the call back and then having to wait another 30 minutes was really trying my patience.
Honestly, I’m just getting tired of the chemo routine. The last few weeks I’ve had more bad days than good days. I keep hoping for a rebound, but it isn’t coming as quickly as I’d like. After today I will be 1/3 of the way through taxol. Can’t wait for this to be done!
Fortunately the nurses are so friendly that after a few minutes, I started to feel a little less grumpy – to that is good. I don’t like grumpy Becky!
We had some time between the blood draw and the infusion appointment, so we walked over to my tree for photos and sat down and enjoyed a brief picnic lunch.