BC Becky

Never Thought I’d Want to be a Breast Cancer Survivor

Author: Becky

  • New Beginnings

    New Beginnings

    A year ago I decided to put aside my PhD – actually it was almost 14 months ago, before the Covid craziness started. After putting together a realistic project plan that showed that it would likely be another two years before I could finish it, I realized that I just wasn’t up for it. I had had enough. It was 10 years after I started, with two leaves of absence – I was done and ready to take control of my life back.

    When I stopped, I had two projects in mind. A book or other publication associated with my PhD (and this blog), as well as a book associated with our Going East blog. A year later, I have not started either. I’ve been too busy with teaching and working on making Treehouse Village Ecohousing a reality (we are over 70% sold and start construction in a couple of months!)

    Of course, there has also been managing Covid in the middle of that, an increased teaching load, and a move to Nova Scotia during a global pandemic. And now a new puppy, who is cute as a button but a ton of work. But really, how much of that is an excuse. If I really wanted to start, I could have started, but inertia is a difficult thing to overcome.

    With the semester winding down, and not teaching this summer, I am finding that I have more time to think about it. I made the first baby step. I created a directory and after writing this blog post, I’m going to create a Scrivener project – actually I may create two, so I can flip between the two projects. They are very different in nature, and doing both will allow me to spend my energy on the one that is meeting my needs in that moment.

    Moving to Nova Scotia has meant that I have not been living and breathing breast cancer. I actually go days without thinking about it. It is rarely top of mind. It has been a breath of fresh air, both literally and figuratively.

    And now to take a deep breath and just start!

    Feature image by Dayne Topkin on Unsplash.

  • Meet Cali

    Meet Cali

    Yesterday I picked her up. Fortunately, the breeder uses a vet that is only 25 minutes from my place, so we arranged for me to pick her up after her shots. I was anxious and clearly so was she. She went into the crate in the car while I settled up the finances, and after less than 10 minutes in the car with the window open (and it being cold and windy) she managed to poop on the edge of the crate near the gate, so I had a hard time getting her out without making a mess. In hindsight, I could have undone the top and lifted her, I didn’t think about it.

    I ended up taking her and putting her in one of the carry bags that I made. I’m super thankful for them. They have a short leash build in, so she cannot jump out or move too much when she is in the bag. I ended up putting her in a bag on my lap and driving home petting her when I could and leaving the windows open cause the car stank! By the time we got home she was calm and napping. Fortunately, we were able to get her home and get her cleaned up pretty easily. She doesn’t yet like being away from us. Also, she is still pretty scared of the outside – since yesterday was the first time she experienced it.

    One thing I found especially weird was buying dog food at the grocery store. I found weird being a person who needs to buy dog food. That hasn’t been something that has been my responsibility before. What makes this funny is that I don’t at all feel weird about baking dog treats. That didn’t feel at all out of my comfort zone. Perhaps that is because I love to bake for people, and I always get positive feedback on my baking. So, I don’t know that I’m selecting the right store bought food, but I know that whatever I make will be well received (at least for people, Cali hasn’t shown a lot of interest in any food except what she was eating at the breeders – so not even treats!). I suspect that will change as she gets more comfortable with us.

    I’m making my own dog treats, but for now I’m buying food. Why? I don’t trust myself to make food that is appropriately well balanced for a puppy – at least not yet. I don’t know what puppies dietary requirements are (other than calcium). I’ve made some peanut butter based treats and some frozen pumpkin & yogurt bones, that help with teething and are also healthy snacks.

    It is both lovely and frightening taking on this responsibility. I love that I get to be a caregiver for something (someone). I love the snuggles and unconditional love that a puppy brings. I’m just frightened that I will do something wrong.

    After reading about the separation anxiety of leaving the litter, I’m super worried about the first 48 hours. There will be a lot of snuggle time. That won’t be a hardship on my part.

  • 2020 … and some thoughts about 2021

    2020 … and some thoughts about 2021

    I have been struggling to write lately. I have written a little on my other blog about my various hikes, but not much else.

    I’ve been reflecting back on 2020 lately. It was a crazy year for me. I made the major decision to stop working on my PhD. Not a week later we went into lockdown around Covid. When I stopped working on my PhD, I had plans that would allow me to spend the extra time working on a book or two. I have two that I want to self-publish, one related to my breast cancer journey and all the work I put into my PhD dissertation. The second is a book about our Going East bike trip. They are still on my to do list. I’ve made zero progress on both.

    In addition to Covid changing everything in 2020, I started teaching more. In 2020, I taught three courses each semester, including the summer. This semester I find myself in the luxury position of teaching only two courses – which is the minimum I need to maintain my status at the university. I won’t be teaching anything this summer. I am so looking forward to taking the summer off of teaching.

    Life has also been busy for me at Treehouse Village. When I stopped working on my PhD, I got more involved in helping make Treehouse a reality. I joined the marketing team and began leading the Community Life Circle, which is responsible for fostering a healthy intentional community. We are now over 60% sold and are planning to start construction this year. It is super exciting to think that in 2022 we will move into Treehouse Village and be in our cohousing community. Until then, we are loving living in Bridgewater.

    Moving would be another big part of my 2020. On July 3rd we decided to move back to Canada. On August 3rd, we got in our van and left California. The logistics for our move was crazy. We packed our stuff into UBoxes and had them shipped to Maine. We had our car shipped to Maine. We drove our van across the US – fortunate that we could sleep in the van for most of our trip. We quarantined for a week in Maine (until we got our negative Covid results), and then once our stuff arrived we moved it all from the UBoxes into a Uhaul truck which towed our car on a flatbed (did you know that you cannot tow an electric car?). August 17 we cross the border into Canada and drove to a friends place for quarantine.

    After quarantine, it took us a month to find a new place to live. We got lucky and found a place that needed work but was very livable in Bridgewater. It is a crazy huge house for the two of us, but it means we have space to renovate, moving from room to room.

    Being in Bridgewater has been amazing. We have several future neighbours from Treehouse Village living in Bridgewater, and as time goes by, more and more of our future neighbours are moving here. There are also several of our friends who chose not to join Treehouse, but did choose to move to Bridgewater. It has been amazing to be someplace and already have friends here.

    I’ve also discovered how close some of the various hiking trails are. And now that winter is here, I’m discovering various places to go skating on ponds, cross country skiing, and snowshoeing.

    Oh ya, and my most important news .. in a couple of weeks I’ll be getting a puppy! She is adorable. I haven’t met her in person yet, but I’ve gotten weekly pictures from the breeder. She is a Cavalier King Charles Spaniel crossed with Toy Poodle – so she will be small. I had originally thought I wanted two dogs, but in the end decided that one would be enough of a handful for now – and if all goes well, maybe I’ll get a second one later. I’m so excited to be a doggy mom. I’ve even started sewing doggy things – I’ve sewing a couple of carry bags so that she can come on walks and hikes with us – as she will need to be carried most of the way while she is still a puppy.

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    And so I wonder, why I’m not getting to book writing …. well, I seem to have filled my days with better things. I’m getting out whenever the weather is good, which is more than I expected – I guess my expectations for winter weather were so low that I’m constantly pleasantly surprised.

    My teaching load is less, so I am finding myself with a little more time – so maybe, that will lead to me doing more writing. We’ll see. For now I’m eagerly anticipating the day I get to bring my puppy home and hoping that I’m ready when she gets here.

  • A New Years Hike

    A New Years Hike

    It was such a beautiful day yesterday, New Years Day, that we had to take advantage of it and go for a hike. When Scott suggested going to the coast, I pulled out our new Hiking Trails of Mainland Nova Scotia book and found one that was nearby – Green Bay to Broad Cove. The Green Bay trailhead was about a half hour drive from our house.

    We didn’t hike the entire trail, as that would have been 12km return, rather we hiked out for just over 2km and then headed back – our total distance 4.5 km.

    The trail itself follows along the coast alternating between beach walks and an old logging road, which has been reclaimed by the ocean in many places.

    Our track along the Green Bay – Broad Cove hiking trail

    For most of our hike we were alone with the ocean, however, we did pass a few fellow hikers. We got there early enough to get parking, and noticed that it was busier as we were leaving.

    Here are some photos from our hike.

    Once we entered the path, we were immediately rewarded with ocean views. The seas were amazingly calm.
    Looking back to where we first entered the beach. The tide was pretty high, so we mostly walked along the upper edge of the beach.
    Scott brought his camera and spent lots of time pausing to play with artistic photos.
    On the way out, we got distracted by climbing on these rocks that we missed the easier pathway – but it was fun clambering up and over them.
    I felt like king of the mountain looking down on Scott from the top of the rocks.
    One side of the path was the ocean and the other side was a series of ponds.
    I was fascinated by the ground cover – a mix of rock, shells, and small pinecones.
    We turned around just after passing this house.
    By the time we got back to the first cove, the tide had retreated and it looked like a very different place.
    I paused to take a closer look at the tide pools that had been recently exposed with the lower tide.
  • Six years and counting…

    Six years and counting…

    Six years ago today I was wheeled into the operating room to undergo a 10 hour surgery that removed the last of the known cancer from my body.

    I never know how I’m going to feel on this day. I always find myself wondering if I’ll be in a celebratory mood or a sad one. The day usually brings some aspect of both, and certainly an aspect of introspection.

    I’m not sad today like I have been in the past on this day. I remember that first year cancerversary. I remember the flood of mixed emotions. Today I seem to have the opposite almost a lack of emotions.

    I love the feature image because the character seems to be struggling carrying the six. It is how I feel – that the last six years have been very heavy.

    How will I celebrate this day? I will celebrate with a nice dinner and I’ll share a bottle of Nova 7 — local bubbly that just feels like celebration. I’m also going to make some gluten-free carrot cake with cream cheese icing – yum.

    It is also our first snowstorm of the year – and a first since returning to Canada. We have had snow a few times, but not a lot. From an Ottawa perspective, this isn’t a huge storm, but from a Nova Scotia perspective it is. Unfortunately, it most likely won’t last. It will be here for a couple of days, but then mid week next week we get warm weather and rain, which will melt away all the snow. Doesn’t look like it will be a white Christmas.

    What I’m missing this year is the desert. We spent many of our years in California camping in the desert over winter. I will miss decorating a cactus this year!

    I also find myself missing my mom at this time of year. Her birthday was December 24. Thinking of how young my parents died (late 60s), I find myself thinking of how limited my life span in apt to be and how I want to be spending the remaining years of my life. That is the type of reflection that happens when I’m thinking about cancer and how it has impacted my life.

    This year is going to be a weird year. Covid means we aren’t traveling. We aren’t camping. Mostly we are taking things day-by-day and one day is blending into the next.

    This blog post has gotten to be rather rambly. I’m going to write another at year end that talks more about just how crazy this year has been. But now, I need to leave the computer and make some carrot cake because it isn’t going to make itself!

  • Taking a deep breath

    Taking a deep breath

    I haven’t written for a while. I’ve been so busy with other life things. Normal life things. I am so grateful to be in a place where i can just take a deep breath.

    Dates are starting to come back to me. It is that time of year. Facebook reminds me with a beautiful sunset in Hawaii. I can feel the warm air and smell the sea and feel the breeze on my face.

    Maui Sunset – November 2014

    This whole Covid thing has me missing my friends.

    We are settling in well in Bridgewater. We haven’t really met anyone outside of the circle of Treehouse friends that we had before moving here – it is just that they are here now in person which is awesome. But, in order to really feel part of this town we need to make friends beyond our Treehouse neighbours and that is difficult in this pandemic time, when social gatherings are not a good idea. We are exceptionally lucky to be in a place where we feel relatively safe – but we also know how quickly that could change. We are seeing signs that may very well lead to another lock down.

    And so, today I’m going to focus on gratitude and showing gratitude for my friends and neighbours.

    Hugs to you all…

    Oh ya, and I have to finish with a plug for Treehouse Village … my new neighbours who have been amazingly welcoming.

    Want to move to Nova Scotia?

    The Duck pond in Bridgewater

    Treehouse Village Ecohousing is made up of a small group of families and individuals with a big idea, and we need your help connecting with future neighbours. You’ve received this message because someone thought you might be a good fit for Treehouse Village or might know others who would be interested.

    Together, we are building the first cohousing community in Atlantic Canada! Treehouse Village will be a small neighbourhood with 30 eco-friendly, fully equipped homes facing onto a pedestrian courtyard with a common house for all to share, including amenities such as a children’s playroom, office space, and an additional large kitchen and dining area for community meals. Situated on 15 acres of forested land, with opportunity for car sharing and collaborative childcare, it’s a perfect blend of privacy and social opportunities.

    As of November 2020, the project is well underway here in Bridgewater, Nova Scotia. Fifteen of the 30 households are committed. Collectively, we own a property, completed the design of our custom neighbourhood, and have a Development Agreement with the Town. The aim is to begin construction this spring and to move into our homes in early 2022. In order to break ground, we need nine (9) more households to join and reserve their homes.

    All this to say, who do you know that is seeking a sustainable lifestyle, ready to try something new, values privacy and a sense of belonging, or might be looking to raise their family in a supportive community? There are many ways to reach prospective neighbours, but by far the most fruitful is good old word of mouth.

    Wondering if this might be for you? We want to hear from you! See our plans, meet our members, and sign up for an online information session at www.treehousevillage.ca or send us an email at info@treehousevillage.ca.

    From the members of Treehouse Village, thank you for helping us build our community!

  • When slow care reduces stress

    When slow care reduces stress

    It has been a while since I’ve written on this blog, in part because I’ve been writing about my adventures in Nova Scotia over on my GoingEast travel blog. Mostly I have been writing about various hikes and other features I’m discovering as I explore my new home in Bridgewater Nova Scotia.

    Healthcare is very different here. I got notification of my follow up oncology appointment by a letter in a the mail – yes they still use paper mail here.

    Initially, my bone density scan was sent to a hospital a little further away than were I am currently living, in part because at the time it was ordered I had no idea where I would be living. Now that we own a home in Bridgewater, I had to phone and leave a message with my oncologist to get the scan reordered in Bridgewater. I didn’t get a follow up phone call or any acknowledgement of my message. I just got a letter in the mail two weeks later with the time and place of my appointment. That too was interesting, as it just said Fisherman’s memorial hospital. It didn’t say where Fisherman’s Memorial Hospital was – it just gave the title (it is in Lunenburg – I’m glad I looked it up because I thought it was in Bridgewater!).

    What is interesting is none of this is stressing me out. I feel like I don’t have any urgent health concerns, so the lack of urgency is OK. Maybe that is something that is actually better – in that yes, in the US I would get faster service, but that service made me feel like I was in need of faster care. That my health needs were urgent. Now, when I was going through cancer care, my needs were urgent. But now, they are not. And now, I am comfortable with that lack of urgency. It has actually reduced my stress level.

    I don’t have a family doctor yet. I have added myself to the list, but have not yet had an urgent need for one. There are drop in clinics, and because of Covid they now have appointments. I hope that they stick with that model as it is so much more convenient for everyone, and healthier for everyone as you don’t have a bunch of sick people stuck in the waiting room together for hours on end waiting for their time slot. Know that option is available has also reduced my stress levels. Overall, I’m a lot less stressed about healthcare.

    One thought that I had a few years ago was the need to create a quick two page health summary – one that is much easier for a new doctor to scan and get the key points that might affect my care. I now have a more urgent need to create such a thing. Since I need to bring my medication list to my bone scan appointment, I’ll start by creating something for that appointment and go from there. The goal is to have it before I need it.

    Do you have any special tips for helping speed up the process when you are seeing a new care provider?

    Feature image by me – a portrait of a leaf.

  • Mixed emotions

    Mixed emotions

    I am at a total loss on how to feel right now. I am overjoyed to be in Nova Scotia. Our house in California closed escrow on Friday, which means it is sold. The new people have started moving in.

    We left so quickly we didn’t get much of a chance to say goodbye. The fires are devastating. Many of the special places I would go hiking have been destroyed. It is like we left just in time. If we had stayed a couple more weeks we would have been in the middle of the fires, trying to escape.

    I am worried for my friends who do not have a choice. We are Canadian, so a move back to Canada was always an option. It is not an option for my friends.

    Things are moving along well here. I have an oncology appointment on Sept 8 with my new oncologist. This means there is a high likelihood that I will be able to get a lupron shot on Sept 11. That is one stressor that is gone.

    We have friends in Nova Scotia and will be going from one place to another until we figure out where we can live. Housing here is a little more complicated than we anticipated. The housing market is just as bad as the Bay Area with things going for more than they are listed.

    So I don’t know how to feel. I am so very privileged to be here right now. I am sad at the loss of so many great hiking trails. I hope that all my friends in the Bay Area stay safe. Sending you all great big hugs.

    I’ll end this post with some photos – what is left of some of the amazing places I hiked and camped.

    Sierra Vista Open Space Preserve
    Tent cabin at Big Basin State Park
    Scott and Judy demonstrating just how big the tree is. This was taken just outside of the visitor centre. The visitor center is gone, but many of the trees survived – this isn’t the first fire they have seen in their 2000+ year lives.
    View of Mount Hamilton from Joseph D Grant County Park. This was taken in the winter/spring so things are green. The hills turn golden in the summer.
    Some of the trees filled with “old man’s beard” moss at Joseph D. Grant County Park.
  • Zoledronic Acid

    Zoledronic Acid

    Zoledronic Acid aka Zometa is a drug given for osteoporosis and also for bone metastasis. Since the two years of Prolia I took didn’t stick, my oncologist recommended zometa – and given that my father had bad osteoporosis (from celiac disease), I wasn’t about to risk it – so I reluctantly agreed.

    Friday I had my first treatment. The theory is that I’d get a dose every 6-months for two years and then after that I would no longer need it. I wasn’t looking forward to it – both because it is given my infusion and second because it can have crappy side effects.

    As much as I was worried about the infusion and my mental reaction to it, it went off without a hitch. It took about a half hour. I can confirm that just like having a port, when you receive the meds via IV you get a strange taste/smell sensation that comes from inside your body. When the nurse first pushed saline into the IV I was reminded of the familiar taste/smell. The Zometa wasn’t too dissimilar to the saline, perhaps a little more plasticy. I pulled out some mints so I didn’t need to taste it!

    Yesterday morning I was feeling OK, and thought that maybe I got away without any negative side effects. Unfortunately, that didn’t last, by mid day I was exhausted and then in the evening I felt feverish. I pulled out a thermometer and discovered I felt feverish because I had a fever! At least i can can confirm that I know by body well enough to recognize when I have a fever.

    I pulled out the listed side effects – I knew “flu like symptoms” was a risk, but I wasn’t sure if that included fever. Yes, apparently fever is also a potential side effect. Yesterday evening I was downright miserable.

    This morning I still had a fever but not as high as yesterday. Some tylenol seems to be keeping it at bay. I’m feeling a fair bit better now, which is good because we have a lot of work to do to get ready for departure on Friday (or more like Saturday).

  • Collapsing … and nostalgia of place

    Collapsing … and nostalgia of place

    Last night, after a very busy few days, we collapsed exhausted. We succeeded in filling the first two containers and getting our house cleaned up and prepped for photos and showings. We even had our first showing a couple hours after the photos, and a second showing today. The house isn’t even listed in MLS yet – so this is a good sign. With any luck we’ll have an offer before we leave.

    When I’m driving around running various errands, I am finding I’m feeling something I call nostalgia of place. It is like having emotional flashbacks when I am in various places – and they aren’t really significant places – places like the hotel we stayed at the first time I came to California or the highway I take to go to the South Bay cancer center. They are not flashbacks in the remembering sense rather they are more a memory of emotions – remembering what I felt at a time in the past while driving down a specific stretch of road.

    It is hard to believe that soon we will be working on lasts … at least lasts until the world gets a little more sane and we decide to come back and visit and have a proper farewell with all my friends. It sucks to be leaving and not being able to give people hugs. A zoom goodbye just isn’t the same as giving someone a great big hug.

    Tomorrow we will be one week to departure. The last couple of weeks have been intense. Now that the house is ready for showings, we are focusing more on getting the van ready for living in. We have a very limited amount of time left and the van definitely needs a few more things before we leave. We’ll be living in it for an undetermined amount of time – and that too is an interesting challenge. I’ll talk more about that in a future post.

    For now, we are celebrating the fact that we got the house read for showing and cleared out two containers worth of stuff. We think we can get our remaining stuff into a single container, but we have two in the driveway just in case we need the second one.

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