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Processing …
Read more: Processing …I’m trying to figure out how to process all that is happening in my life right now. I feel like I am surrounded by death. Someone I knew from support group died a couple days ago. I did not know her well, but I did know her. I remember her energy and smile from the…
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Mask making
Read more: Mask makingWe were surprised at how quickly we got the call to go up to Hamilton to get mom setup for cyberknife radiation treatment. This involved the making of the mask, which were allow in to see and for me to take pictures. The mask making process took about 15 minutes. Then we waited on…
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A telehealth call
Read more: A telehealth callYesterday we had a telehealth call with a specialist in Hamilton, where they are able to do cyberknife radiation. We went to the regional clinic in St. Catherines (about a half hour drive) to have this call. On the other end was the radiation oncologist that does cyber knife and a neurosurgeon. They did a great…
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Where the mind goes
Read more: Where the mind goesI am reminded of the time awaiting for treatment and where the mind goes. I am reminded of when I said: Everything is either too fast or too slow. I feel like the cancer is growing too fast. With each new ache in my body I am worried about it spreading. Is this another symptom? Has…
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Esophagogastroduodenoscopy – now that is a mouth full!
Read more: Esophagogastroduodenoscopy – now that is a mouth full!Pardon the pun in the title. I’m happy to report that the endoscopy that I had yesterday showed that the villi in my small intestine now look normal. This means that the gluten free diet I have been on for the last couple of years has allowed my body to heal from the damage caused by the celiac disease antibodies.…
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Online support for pRCC
Read more: Online support for pRCCAs someone with strong online support connections, when mom was diagnosed with stage 4 pRCC (papillary renal cell carcinoma), a rare form of a rare cancer, I felt the need to find some online community. It was not nearly as easy as it is for breast cancer, in that there are not a ton of…
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The #PAPMET clinical trial
Read more: The #PAPMET clinical trialOriginally mom was told there were no clinical trials that she qualified for. Kidney cancer is rare, and papillary renal cell carcinoma (pRCC) is a rare form of kidney cancer. Fortunately, she was informed that there was a clinical trial that she qualified for (or will qualify for after treating her brain mets). pRCC is…
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Relational and activity based identities
Read more: Relational and activity based identitiesI’m currently reading Teaching, Learning, Literacy in Our High-Risk High-Tech World: A Framework for Becoming Human by James Paul Gee (2017). In it, he talks about […]
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Not what we wanted to hear, but not as scary as it sounds (maybe)
Read more: Not what we wanted to hear, but not as scary as it sounds (maybe)Mom got a phone call on Friday. The results of her head CT were in. They were not what we wanted to hear – but I’m glad the doctor was able to give her the results over the phone. I’m also glad that I had a conversation about the potential results before she got the phone…
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We are a rare family
Read more: We are a rare familyAs a family, we seem to be dealing with rare health issues. When I was diagnosed with bilateral breast cancer, I learned that it was rare (less than 2%) to have cancer in both breasts at the same time. Then there is my brother. On Friday evening last week we had a phone call that…
