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When you use my data, please say thank-you
Read more: When you use my data, please say thank-youI’m working on a systematic literature review based upon researchers that use breast cancer blogs. This particular review was inspired by a comment written by Caroline on my blog post about the Usage guidelines for researchers who use blogs. In the comment Caroline mentions that “I would never have thought my blog could be used…
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Things I do not say
Read more: Things I do not sayI have been reflecting for a while on the things that I do not blog about. I’ve wanted to blog, but I could not. I could not share my fear and anxiety with my family. They had enough happening. They did not need my issues, especially if they turned out to be non-issues, added to…
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Virtually Connecting + ePatients #vcept
Read more: Virtually Connecting + ePatients #vceptAs some of you know one of the things I do is called Virtually Connecting. It started out as a fun thing to do with a friend and has since blossomed into a movement that has introduced me to many amazing people who I know consider close friends. So far VC has mostly focused on…
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The costs of treatment
Read more: The costs of treatmentI’ve been thinking at lot lately about the costs of treatment. For the moment I have good insurance, so I can see the bills but I don’t need to worry about them – at least not right now. Each year our medical insurance changes, things get eroded, what was covered last year may not be…
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Usage guidelines for researchers who use blogs
Read more: Usage guidelines for researchers who use blogsI’m thinking of calling out to the blogging community (more specifically to the cancer blogging community – but I’m sure this extends to other blogospheres), in trying to create some way to signify to researchers how the blogger wants their blog to be used in research. I’m thinking something similar to what creative-commons has done…
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It’s that time of year again #cancerversaries
Read more: It’s that time of year again #cancerversariesWhat has happened to it all? Crazy someone say Where is the life that I recognize? Gone away But I won’t cry for yesterday There’s an ordinary world Somehow I have to find And as I try to make my way To the ordinary world I will learn to survive ~ Duran Duran, lyrics to…
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Citing vs anonymizing blogs in research
Read more: Citing vs anonymizing blogs in researchAs many of you know, I’m both a blogger and an academic. I’m looking at doing my research on breast cancer blogs. As a result, I’m reading a lot of academic literature surrounding illness blogs in general, and breast cancer blogs specifically. There is a practice within some research communities to anonymize blog text –…
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Do I avoid the sadness? #celiac
Read more: Do I avoid the sadness? #celiacAt breakfast this morning I found myself sad. It was supposed to be a simple breakfast. I brought food that allowed me to participate in a simple breakfast. However that is not how it turned out. People brought contributions that turned simple into exotic, but none of the contributions were gluten free. Even the avocados…
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My weekly tri
Read more: My weekly triNow that I’m coming back from a slew of injuries, I’m trying to get my self back into shape. After my swim yesterday, I was also reminded by how much I actually enjoyed getting out and swimming. It wasn’t about getting fit so that I could do the things that I enjoy, it was much…
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Live life on your own terms
Read more: Live life on your own termsLast weekend I attended a memorial service for a friend from support group. She was the first person within my face-to-face circle of friends to die of breast cancer. I find myself wondering, if you die of complications related to the treatment of breast cancer, is it still considered dying of the cancer? Anyways, that…
