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Snake oil and cancer care
Read more: Snake oil and cancer careI have found myself reflecting a lot lately on how one can tell the difference between internet sites / social media posts that are sharing ‘snake oil’ versus those that are sharing legitimate treatment information. When I talk about ‘snake oil’, I’m talking about alternative treatments that are in no way proven, but more importantly are…
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Study idea: Comparing pt peer SE advice with care team SE advice in MBC pts
Read more: Study idea: Comparing pt peer SE advice with care team SE advice in MBC ptsWhile I was hiking yesterday I had a thought for a study I’d like to do – or at least research whether anyone else has […]
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Re-grounding
Read more: Re-groundingI cried the entire drive home from my oncologist appointment on Monday. I’m not sure if part of it was that I also had my Lupron shot, so my hormones might have made me a little more emotional than usually. But at least part of it was that I felt like the ground was pulled out…
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I’m not brave – another cancer war metaphor
Read more: I’m not brave – another cancer war metaphorWith John McCain’s diagnosis with brain cancer, we are seeing discussion about cancer and the war metaphor in the media. My social media streams are full of articles like this one Obama’s tweet to John McCain about his diagnosis was the last thing cancer survivors wanted to see. The author makes an important point about…
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One year gluten free #celiac #gflife
Read more: One year gluten free #celiac #gflifeIt was about this time last year that I was last ‘glutened’ (a term used by celiacs to describe accidental injection of gluten). It has taken me a while to learn how to navigate in the world gluten-free. I was overly cautious – until I learned that my antibody counts were normal. Then I ventured out…
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I’ve stopped sharing my crisis
Read more: I’ve stopped sharing my crisisYet again I went through another scare. It happens much less often now. I’d say about twice a year. Something happens. I feel a pain or a lump or a bump – and my mind spins out of control. I get overwhelmed with fear. It started a couple of weeks ago when my family doc…
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The complexities / interplays of trust
Read more: The complexities / interplays of trustOne of the “themes” that has emerged in my dissertation study is that of “learning about the disease”. When I look at the types of information I shared on my blog between diagnosis (June 12) and active recovery (Feb 3) is that of learning about the disease. I’m looking at the different ways in which…
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Infusion-fatigue
Read more: Infusion-fatigueAs I work through my research data coding, I’m having to read and re-read and re-read… the BCBecky blog posts from the beginning through February 3, 2015. Some of the posts are particularly emotional, as the memories come flooding back. In others, my memory of the time is totally different. When reading about my chemotherapy experience,…
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SF Pride
Read more: SF PrideYesterday, my hubby and I and friends got a chance to march in the San Francisco Pride parade with the Bay Area Young Survivors – and organization that provides support for those diagnosed with breast cancer under the age of 45 (ish). The group is an intentionally open organization – often looking at which gender pronouns…
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Looking for theme validation help
Read more: Looking for theme validation helpOne of the challenges I’m having with my research is with the identification of themes within the blog posts. I’ve identified 10 key themes that I’d like use, but I’m afraid that because I’m coding my experience, I’m reading more into the blog posts than what others see. In this way, I’m too close to…
