Category Archives: Celiac

Does someone in your family have celiac?

I’m reading the University of Chicago Celiac Disease Center’s free ebook Jump Start Your Gluten Free Diet: Living with Celiac/Coeliac Disease & Gluten Intolerance. As I read I find I’m a little frustrated. I wish someone had told me sooner that celiac disease was a genetic disease – that is, there is a gene mutation… Read More »

Thank you University of Chicago Medicine (@CureCeliac)

The kind folks at University of Chicago Medicine Celiac Disease Center have a program where they send out care packages to those of us who are recently diagnosed with celiac disease (requires formal diagnosis either with biopsy or via current protocols). The Gluten Free Care Package contains some food samples, a bunch of coupons, and some… Read More »

Celiac … it’s a real thing

I recently asked an online celiac support group what messages they would like to send to an audience of healthcare professionals. I was really surprised at one of the answers. People wanted a formal letter from their doctor to their family members explaining that celiac was a real thing, and that gluten cross contamination was… Read More »

DNR …

DNR … it is a gift you give your loved ones, although it is a really difficult one to hear. My father is currently being evaluated to see if he qualifies for a double-lung transplant. His current lungs have been damaged by sarcoidosis – an auto-immune disease that was likely made worse by undiagnosed/untreated celiac… Read More »