Category Archives: Caregiving


Progression. It is one of the words you never want to hear. It means that cancer is growing – it is getting worse. For a couple of weeks now, mom has been noticing some shortness of breath. It has been getting progressively worse. We set up on oncology appointment on Monday before the schedule cyberknife… Read More »

A telehealth call

Yesterday we had a telehealth call with a specialist in Hamilton, where they are able to do cyberknife radiation. We went to the regional clinic in St. Catherines (about a half hour drive) to have this call. On the other end was the radiation oncologist that does cyber knife and a neurosurgeon. They did a great… Read More »

Where the mind goes

I am reminded of the time awaiting for treatment and where the mind goes. I am reminded of when I said: Everything is either too fast or too slow. I feel like the cancer is growing too fast. With each new ache in my body I am worried about it spreading. Is this another symptom? Has… Read More »

Esophagogastroduodenoscopy – now that is a mouth full!

Pardon the pun in the title. I’m happy to report that the endoscopy that I had yesterday showed that the villi in my small intestine now look normal. This means that the gluten free diet I have been on for the last couple of years has allowed my body to heal from the damage caused by the celiac disease antibodies.… Read More »

The #PAPMET clinical trial

Originally mom was told there were no clinical trials that she qualified for. Kidney cancer is rare, and papillary renal cell carcinoma (pRCC) is a rare form of kidney cancer. Fortunately, she was informed that there was a clinical trial that she qualified for (or will qualify for after treating her brain mets). pRCC is… Read More »

We are a rare family

As a family, we seem to be dealing with rare health issues. When I was diagnosed with bilateral breast cancer, I learned that it was rare (less than 2%) to have cancer in both breasts at the same time. Then there is my brother. On Friday evening last week we had a phone call that… Read More »

Treatment options for mom

We had an interesting call yesterday – from a nurse at the oncologists office. She said that the doctor wanted to prescribe Yervoy (Ipilimumab) & Opdivo (Nivolumab). In order to do this, mom would need to apply to the Access to Hope program, which would allow her access to these medications possibly for free. This is the… Read More »