I cannot describe it any other way than weirdness. On Friday we went up to Hamilton again in order for mom to have a repeat brain MRI. We are going to try again this Friday for the cyberknife treatment. It was weird watching the MRI tech place the IV in mom prior to the MRI. My only other experience with that involved me being the one sitting in the chair getting stuck with the IV.
It appears that mom is tolerating the Sutant well. The Sutant is clearly doing something, and we think it is helping mom’s lungs, as she seems to be doing a lot better with her breathing – she even forgot to turn on the oxygen when we went for a walk the other day.
Last weekend I had the opportunity to spend the weekend white water kayaking with a bunch of amazing women. I went with a group from Bay Area Young Survivors, and the group that put on the weekend was the California Womens Watersport Collective – who provided an amazing group of guides that made us feel comfortable on the water as we stretched our comfort zones. I was super amazed at how well I was able to do in the boat. The last time I was in a whitewater kayak was 1999, and that was in a swimming pool! (taking lessons to help prepare us for our sea kayaking adventure in Gwaii Haanas.
Tuesday (June 12) also presented the fourth year anniversary of my diagnosis. It is hard to believe that was only four years ago, because it feels like a lifetime ago – and yet, with the experiences I’m sharing with my mother bring me right back to the experiences I had at diagnosis … remembering my first MRI. It is weird the way life takes you back in circles in ways that you never expected.
Anyways, this post is a series of ideas and thoughts since I haven’t blogged in a while … I’m in Welland now with mom, and things are going OK. I spent the afternoon with a friend and my hubby stand up paddle boarding and walking.